Microworkers for negative reviews?
- Thread starter shindig
- Start date
I really wish. Everyone has a different opinion.
I've been through 3 systems here in Seattle, Swedish neuroscience, Northwest Hospital, and Univ. WA.
Swedish neuro diagnosed as a rare 1 per 1 million population disease that is a diagnosis of exclusion, meaning they couldn't find a cause of a lesion on an MRI. Spinal tap was clear of known infection/virus/etc. I took steroids for 3 months which got rid of the lesion but the pain never got better. Tolosa
I went to a neurologist at Northwest for a second opinion. He said since my eye wasn't paralyzed it wasn't what Swedish diagnosed. He just said cranial neuropathy. He referred to neurosurgeon who did this:
But that didn't help so he started giving percocet for breakthrough pain. It helped but only temporarily. He then gave me oxycontin which is the same ingredient but just low dose over time, and it made things a lot better.
After the surgery, I got a referral to an ENT at UW to see what he could find. He had a 3rd diagnosis, scheduled a surgery, but my neurologist at Northwest talked him out of it, so the ENT sent me back to the Neuro at NW.
Pain clinic was worthless and set me back, so I went back to Swedish to 1 of two neurosurgeons in Seattle that do experimental surgeries for nerves in the face that my neurosurgeon had never heard of.
Swedish ubber expert looked through all my stuff, and said the original THS was correct, I shouldn't have had the surgery that I did at Northwest. He said the inflammation from the lesion of THS damaged the nerves/structure behind my eye causing the pain across the left half of my face and behind my eye, even though the lesion is gone.
Basically if I move my eye it feels like an ice pick stabbing from the eye all the way back to the roof of the throat above the tonsil.
Yes for nerve pain I've noticed similar. If I smoke buds, it can bring the burning nerve to the forefront, however, if I smoke hash or eat a concentrate from the dispensary, it does the opposite.
The psychiatrist doesn't take part in diagnosis, he just writes the meds. I had to shuffle meds around to get on the stop smoking pill. The meds they use for neuropathic pain are old anti depressants from the 70's that aren't used for depression anymore. Since I'm near the max doses before it kills you, he's apparently the guy with the most experience.
Shit. Hope you find an answer soon.
Shindig, did you ever get an opinion from a foreign doctor like in Britain or Thailand? I don't know if you're aware of this, but despite rumors to the contrary, american doctors suck shit.
Even Mexican doctors are better than 99% of american doctors... And you can't afford the 1% doctors here that are better.
In Bangkok, I could walk in and see a doctor that actually has decades of experience, and when he fixed something, it stayed fixed... None of this "treat the symptom" shit americans think passes for medicine.
Good luck bro. Lemme know if you're looking for a doctor in Thailand, I've seen a couple now, although none for a busted noggin.
Even Mexican doctors are better than 99% of american doctors... And you can't afford the 1% doctors here that are better.
In Bangkok, I could walk in and see a doctor that actually has decades of experience, and when he fixed something, it stayed fixed... None of this "treat the symptom" shit americans think passes for medicine.
Good luck bro. Lemme know if you're looking for a doctor in Thailand, I've seen a couple now, although none for a busted noggin.
There is nothing wrong with being dependent on a properly-used medication, especially when it is working as intended. If it is controlling the man's pain, then it is what should be used.
Dependency =/= addiction.
I'm not speaking from a moral perspective. What I meant was that the long-term consequences of treating chronic pain with opiates are difficult unto themselves.
I transitioned careers from construction to programming while on oxycontin. I still work there full time and do contracting for a second company developing for kinect v2 and oculus rift v2 projects, which is a blast.
I was taking 2x 20mg oxycontin and 2x 5mg percocet for breakthrough along with the nerve meds. I quit cold turkey and never had any ounce of craving like I do for tobacco, or even coffee. Just felt sick with a terrible flew and would wake up soaking wet at night, for 8 days. Still went to work. The nerve pain meds cause seizures if you stop cold turkey, so being dependent on opiates wasn't a big issue when you're already dependent on several other types of drugs. There's also a big difference between abusing the drugs and taking as directed. As directed oxycontin releases a couple/few mg an hour. Much different from snorting or injecting high doses.
The biggest pain about being on narcotics was the refill process. You can't refill too early and they won't give refills, so you only have a couple days before you run out before you can cash in a prescription for the next month. It really sucks when you are going on vacation or a trip and they won't fill it or they ran out (happens a lot).
@LukeP I've thought about going to other countries. Next time I go to costa rica I was going to see what they can come up with.
I was taking 2x 20mg oxycontin and 2x 5mg percocet for breakthrough along with the nerve meds. I quit cold turkey and never had any ounce of craving like I do for tobacco, or even coffee. Just felt sick with a terrible flew and would wake up soaking wet at night, for 8 days. Still went to work. The nerve pain meds cause seizures if you stop cold turkey, so being dependent on opiates wasn't a big issue when you're already dependent on several other types of drugs. There's also a big difference between abusing the drugs and taking as directed. As directed oxycontin releases a couple/few mg an hour. Much different from snorting or injecting high doses.
The biggest pain about being on narcotics was the refill process. You can't refill too early and they won't give refills, so you only have a couple days before you run out before you can cash in a prescription for the next month. It really sucks when you are going on vacation or a trip and they won't fill it or they ran out (happens a lot).
@LukeP I've thought about going to other countries. Next time I go to costa rica I was going to see what they can come up with.
Could you not make oil/pick up trimmings, and then make cannabutter and make edibles? They should last a comparative amount of time to the oxys, and if it compared to them in terms of pain relief, obviously that would be better than the oxys, and if you're buying trimmings, it shouldn't be too expensive, and a lot cheaper than buying concentrates from a dispensary.
I wouldn't go leaving negative reviews until you have an idea what it actually is - the fact that multiple doctors have been unable to diagnose it means you can't really single out any individual one for not managing, at least for the moment. It also doesn't help you to leave negative reviews.
Anyone trying to diagnose here, based on the facts that you're under 40, have chronic neural pain, and experience it when moving your eyes, really shouldn't, it's impossible. There's a reason tests are done.
Don't bother with the negative reviews. What are you going to get out of it?
What's the absolute best case scenario if you were successful?
What's the absolute worst case scenario if things backfire?
What's the absolute best case scenario if you were successful?
What's the absolute worst case scenario if things backfire?
Not related to your thread question.
But hey OP, not sure whether there is anything similar in the states, but try a combination of high dose Vitamin E, vitamin B1, B6 and B12.
By high dose I mean 100IU of Vit E, 300mg each of B1 and B6, and 1000mcg of B12. (or similar dose, you can take these per 1-3 times daily).
It is exceptionally good for nerve pain, and it reduces the use of other analgesic too.
Cheers.
But hey OP, not sure whether there is anything similar in the states, but try a combination of high dose Vitamin E, vitamin B1, B6 and B12.
By high dose I mean 100IU of Vit E, 300mg each of B1 and B6, and 1000mcg of B12. (or similar dose, you can take these per 1-3 times daily).
It is exceptionally good for nerve pain, and it reduces the use of other analgesic too.
Cheers.