There really is no big information need / reason to make websites about this.
You come with that pain to a competent doctor, he'll know what it is and refer you to a neurologist.
It used to be untreatable means 100 years ago.
Nowadays treatment is available and (mostly) easy.
To shindig:
Good for you that everything went well. Wishing you a speedy recovery and loads of fun on your new job.
Don't forget us here and write some cool stuff about it.
::emp::
heh I went to the doctor, dentist, orthodontist before getting to the first neuro who was a pile of shit just out of school. He came to a diagnosis of "tolosa-hunt syndrome" which is 1 case per 1 million population.
Eventually I went for a second opinion to a really amazing neurologist who was a professor at Yale and currently teaches at University of WA so he was extremely knowledgeable.
Usually it takes a couple years and more than 7 doctors average to get a diagnosis. But even taking oxy, nortriptyline, cymbalta, neurontin, lyrica and tegretol they only help a little because your body adjusts to them quickly so you have to keep upping until you're just exhausted every day and still in pain.
The other thing is the symptoms overlap with hundreds of other illnesses ranging from cancer to herpes to lyme disease, so you have to eliminate all this other shit before they hone in on the nerve. I was tested 3x for lyme, 3x for herpes and shingles, did a spinal tap which revealed nothing, etc
For me over the past year I've hit the max dose on 2 of my drugs so they did a 3rd MRI and from there said all 3 MRI's show compressions on the nerve so they sent me to surgery. And from the time I woke up the real pain is gone so it's pretty eye opening. I'm usually all into eating healthy, and avoiding doctors but I guess when there's physical rubbing diet and excise won't change the positions of the rubbing parts.
There is a really good portal for TN with a forum, stories, and resources. I wouldn't have had the surgery if I hadn't read some good success stories. Even mine was only supposed to be 50/50 chance of success because I had atypical pain which responds the least to the surgery, but because it was caused by a compression they went for it.
Here's a pic I took last night:
And shit when I woke up this morning after not taking pain killers since last night it doesn't even hurt.
